{"id":1776,"date":"2020-03-10T17:42:32","date_gmt":"2020-03-10T16:42:32","guid":{"rendered":"http:\/\/ela-asso.lu\/?p=1776"},"modified":"2026-10-17T22:03:40","modified_gmt":"2026-10-17T20:03:40","slug":"en-2020-on-gagne-contre-les-leucodystrophies","status":"publish","type":"post","link":"https:\/\/ela-asso.lu\/en\/2020\/03\/10\/en-2020-on-gagne-contre-les-leucodystrophies\/","title":{"rendered":"We won\u2019t give up!"},"content":{"rendered":"<p style=\"text-align: center;\"><span style=\"color: #e810a4;\"><strong>In 2020, we are giving ourselves the means, and accelerating!<\/strong><\/span><\/p>\n<p style=\"text-align: center;\"><span style=\"color: #e810a4;\"><strong><span style=\"text-decoration: underline;\">Goal:<\/span> fund a clinical trial<\/strong><\/span><\/p>\n<p style=\"text-align: center;\"><span style=\"color: #e810a4;\"><strong>Every step brings us closer to Victory<\/strong><\/span><\/p>\n<p>&nbsp;<\/p>\n<p><strong><span style=\"color: #e810a4;\"><i>CACH syndrome <\/i><\/span><\/strong>affects very young children. An enzyme does not work and prevents cells from making myelin<\/p>\n<ul>\n<li>motor problems, in particular in walking<\/li>\n<li>encephalopathy<\/li>\n<li>irritability<\/li>\n<li>drowsiness<\/li>\n<li>seizures<\/li>\n<\/ul>\n<p>The disrupted cellular mechanisms cause stress in the cells.<\/p>\n<p>Laboratory work has tested drugs capable of reducing cellular stress<\/p>\n<p>A paediatric <span style=\"color: #e810a4;\"><strong>clinical trial<\/strong><\/span> is being prepared at a cost of \u20ac500,000, we are on the threshold of the first treatments, ELA&#8217;s hope is growing<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><strong><span style=\"color: #e810a4;\">All together against leukodystrophies<\/span><\/strong><\/p>\n<p style=\"text-align: center;\"><span style=\"color: #e810a4;\"><strong>We are counting on you<\/strong><\/span><\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><span style=\"color: #e810a4;\"><strong>Because if not you, then who?<\/strong><\/span><\/p>\n<p>&nbsp;<\/p>\n<p><iframe loading=\"lazy\" title=\"ELA - Nathan et No\u00e9, des enfants comme les autres et puis la vie bascule...\" width=\"1380\" height=\"776\" src=\"https:\/\/www.youtube.com\/embed\/XpPxcJBJcfc?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen><\/iframe><\/p>\n","protected":false},"excerpt":{"rendered":"<p>In 2020, we are giving ourselves the means, and accelerating! Goal: fund a clinical trial Every step brings us closer to Victory &nbsp; CACH syndrome affects very young children. An enzyme does not work and prevents cells from making myelin motor problems, in particular in walking encephalopathy irritability drowsiness seizures<span class=\"more-link\"><a href=\"https:\/\/ela-asso.lu\/en\/2020\/03\/10\/en-2020-on-gagne-contre-les-leucodystrophies\/\">Read More &rarr;<\/a><\/span><\/p>\n","protected":false},"author":3,"featured_media":1777,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"two_page_speed":[],"footnotes":""},"categories":[12],"tags":[],"class_list":["entry","author-christophe_lambot","post-1776","post","type-post","status-publish","format-standard","has-post-thumbnail","category-la-recherche-avance"],"_links":{"self":[{"href":"https:\/\/ela-asso.lu\/en\/wp-json\/wp\/v2\/posts\/1776","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ela-asso.lu\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ela-asso.lu\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ela-asso.lu\/en\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/ela-asso.lu\/en\/wp-json\/wp\/v2\/comments?post=1776"}],"version-history":[{"count":8,"href":"https:\/\/ela-asso.lu\/en\/wp-json\/wp\/v2\/posts\/1776\/revisions"}],"predecessor-version":[{"id":2763,"href":"https:\/\/ela-asso.lu\/en\/wp-json\/wp\/v2\/posts\/1776\/revisions\/2763"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ela-asso.lu\/en\/wp-json\/wp\/v2\/media\/1777"}],"wp:attachment":[{"href":"https:\/\/ela-asso.lu\/en\/wp-json\/wp\/v2\/media?parent=1776"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ela-asso.lu\/en\/wp-json\/wp\/v2\/categories?post=1776"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ela-asso.lu\/en\/wp-json\/wp\/v2\/tags?post=1776"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}