{"id":1776,"date":"2020-03-10T17:42:32","date_gmt":"2020-03-10T16:42:32","guid":{"rendered":"http:\/\/ela-asso.lu\/?p=1776"},"modified":"2023-08-24T10:19:03","modified_gmt":"2023-08-24T08:19:03","slug":"en-2020-on-gagne-contre-les-leucodystrophies","status":"publish","type":"post","link":"https:\/\/ela-asso.lu\/lu\/2020\/03\/10\/en-2020-on-gagne-contre-les-leucodystrophies\/","title":{"rendered":"On ne l\u00e2chera rien!"},"content":{"rendered":"<p style=\"text-align: center;\"><span style=\"color: #e810a4;\"><strong>En 2020, on se donne les moyens, et on acc\u00e9l\u00e8re!<\/strong><\/span><\/p>\n<p style=\"text-align: center;\"><span style=\"color: #e810a4;\"><strong><span style=\"text-decoration: underline;\">Objectif:<\/span> financer un essai clinique<\/strong><\/span><\/p>\n<p style=\"text-align: center;\"><span style=\"color: #e810a4;\"><strong>Chaque pas nous rapproche de la Victoire<\/strong><\/span><\/p>\n<p>&nbsp;<\/p>\n<p>Le <strong><span style=\"color: #e810a4;\"><i>syndrome CACH <\/i><\/span><\/strong>touche des enfants tr\u00e8s jeunes. Une enzyme ne fonctionne pas et emp\u00eache les cellules de fabriquer la my\u00e9line<\/p>\n<ul>\n<li>probl\u00e8mes moteurs, en particulier dans la d\u00e9marche<\/li>\n<li>enc\u00e9phalopathie<\/li>\n<li>irritabilit\u00e9<\/li>\n<li>somnolence<\/li>\n<li>convulsions<\/li>\n<\/ul>\n<p>Les m\u00e9canismes cellulaires perturb\u00e9s entra\u00eenent un stress des cellules.<\/p>\n<p>Des travaux en laboratoire ont test\u00e9 des m\u00e9dicaments capables de diminuer le stress cellulaire<\/p>\n<p>Un <span style=\"color: #e810a4;\"><strong>essai clinique<\/strong><\/span> p\u00e9diatrique se pr\u00e9pare pour un co\u00fbt de 500 000 \u20ac, nous sommes \u00e0 l&#8217;aube des 1ers traitements, l&#8217;espoir ELA et il grandit<\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><strong><span style=\"color: #e810a4;\">Tous ensemble contre les leucodystrophies<\/span><\/strong><\/p>\n<p style=\"text-align: center;\"><span style=\"color: #e810a4;\"><strong>On compte sur vous<\/strong><\/span><\/p>\n<p>&nbsp;<\/p>\n<p style=\"text-align: center;\"><span style=\"color: #e810a4;\"><strong>Parce que si pas vous, alors qui?<\/strong><\/span><\/p>\n<p>&nbsp;<\/p>\n<p><iframe loading=\"lazy\" title=\"ELA - Nathan et No\u00e9, des enfants comme les autres et puis la vie bascule...\" width=\"1380\" height=\"776\" src=\"https:\/\/www.youtube.com\/embed\/XpPxcJBJcfc?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen><\/iframe><\/p>\n","protected":false},"excerpt":{"rendered":"<p>En 2020, on se donne les moyens, et on acc\u00e9l\u00e8re! Objectif: financer un essai clinique Chaque pas nous rapproche de la Victoire &nbsp; Le syndrome CACH touche des enfants tr\u00e8s jeunes. Une enzyme ne fonctionne pas et emp\u00eache les cellules de fabriquer la my\u00e9line probl\u00e8mes moteurs, en particulier dans la<span class=\"more-link\"><a href=\"https:\/\/ela-asso.lu\/lu\/2020\/03\/10\/en-2020-on-gagne-contre-les-leucodystrophies\/\">Read More &rarr;<\/a><\/span><\/p>\n","protected":false},"author":3,"featured_media":1777,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"two_page_speed":[]},"categories":[12],"tags":[],"_links":{"self":[{"href":"https:\/\/ela-asso.lu\/lu\/wp-json\/wp\/v2\/posts\/1776"}],"collection":[{"href":"https:\/\/ela-asso.lu\/lu\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ela-asso.lu\/lu\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ela-asso.lu\/lu\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/ela-asso.lu\/lu\/wp-json\/wp\/v2\/comments?post=1776"}],"version-history":[{"count":7,"href":"https:\/\/ela-asso.lu\/lu\/wp-json\/wp\/v2\/posts\/1776\/revisions"}],"predecessor-version":[{"id":1784,"href":"https:\/\/ela-asso.lu\/lu\/wp-json\/wp\/v2\/posts\/1776\/revisions\/1784"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ela-asso.lu\/lu\/wp-json\/wp\/v2\/media\/1777"}],"wp:attachment":[{"href":"https:\/\/ela-asso.lu\/lu\/wp-json\/wp\/v2\/media?parent=1776"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ela-asso.lu\/lu\/wp-json\/wp\/v2\/categories?post=1776"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ela-asso.lu\/lu\/wp-json\/wp\/v2\/tags?post=1776"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}